1 May 2014
Good Morning, Patient Reader!
Well, I have a shit-ton more to rant about regarding the
views and opinions I have of cancer, and as I thought about it last night, it’s
also a raging against the machine of (American) healthcare. So I will tell more of the Miranda story, as
it reflects views of both topics.
Shall I
continue? Splendid!
The Bodhisattva of Compassion
Miranda never knew the memories sown
by her paroxysms. These dark crops grew
only in the minds of we who watched.
Miranda did not know she urinated on
herself during her seizures; she did not know she wept weakly between them.
Oh, but we knew. We who held her head so it would not bounce
off the tiled floor, our fingers bruised and swollen from the beating of her
Hammer Head and the anvil under our fingers.
The floor as unyielding as a god.
We who cleared the vomit that was
forced out like magma from a raging earth until all that was left was the bile
squeezed by a wicked reverse-peristalsis from the wrenchings against her gall
bladder; cleared it from her mouth and throat, our fingers careful of the movements
associated with seizure-induced mastication. Our ruined wristwatches marked the frozen timeline.
We who saw the wearily terrified
mother who knew exactly what Wit’s End looked like. She was able to draw it like a photograph
from memory alone.
A prolonged seizure, status epilepticus, is potentially
fatal. Global brain damage from frying
neurons; anoxia from loss of the mechanics of breathing . . . all manner of
horrors can result from a paroxysm lasting ten minutes or more. Ten minutes on a ruined wristwatch; en
eternity for a mother.
So we watch our ubiquitous clocks
and count those goddam minutes; we watch with extreme vigilance- ready to fight
the darkness creeping down the cold and quiet corridors toward us; ready to
kick at the tenacious, slouching demons inherent within the mist.
After the seizure comes the post-ictal phase, the violent
throes of headache and diaphoresis. The
flood of lactic acids form by muscle cells overstressed and weeping venom and
all she knows is that every one of those muscles scream in the pain of
poison. Too much muscle damage too
quickly can cause rhabdomyolysis and
shut odwn the kidneys as they try to eliminate such large volumes of myoglobin;
the urine brown from such an assault.
Then the
helplessness of inability to explain to Miranda why her life hurts so
much. To explain it to her, or ourselves
for that matter.
I picked Miranda
up and placed her on the nearby stretcher we kept fresh and ready for
situations such as this. Miranda was
lethargic and obtunded and smelled of the vomit already drying.
I was amazed that Carol, the
mother, began to wipe the vomit from my hands and sleeves, wincing at what it
did to my wristwatch.
I am never amazed.
It saddened me that Carol was so
adept at taking care of her daughter’s seizure disorder, and all the baggage
that came with it, that this task came so easily to her. It was learned by rote. It angered me that these paroxysms came so
often that the task of cleaning up unmanaged secretions and excretions was
perfunctory.
Too much ruin lay within the tumor’s
wake.
I stopped Carol, thanking her for
her troubles. “I use a dry cleaner . . .
he’s very good.” Yeah, I was somebody
who could afford a dry-cleaner regularly, and my explanation was lame.
She held on to my hands a bit
longer than she should have , and I let her.
Miss Vera, one of my technologists
and someone in whom I placed a great deal of respect, saw this that passed
between Carol and me. She later told me,
Go to her, Fox. She won’t be comforted
any other way, baby.”
Miss Vera was the only person who
called me baby, or could. She was like a
grandmother to me; old and wise, yet letting neither stand in the way of her
humanity.
I recognized that moment of Carol
and Me, having seen it so many times over the years of my then so short life; I
recognized it for what it was: it was the non-lust
. . . the non-love.
Our permeable souls let in pain like the vampire at
the door. Physical touch is the
talisman, the crucifix, that banishes it.
This is an ache born neither from
love or lust. This is only the vacuum
left behind when something within us is shifted aside or removed altogether.
It’s the ache of the hole that
needs filling. The empty grave dug for
the heart that used to beat before it broke.
We use our innate abilities, these
well-worn tools for comfort; the giving and the receiving of it. The offering of pleasure, and the drinking of
it, thirstily.
We reach for one another across
chasms filled with sorrows found only in an abyss filled with regret.
We fend off the creeping grief,
even for the briefest of moments, illuminating the darkness of pain with the
light and the glow of our heat.
This is not love either, for within it there is no lie.
Stay tuned, Patient Reader; there's a bit more I have to say about all of this.
'Til then, then.
I thank you.
The Cunning Fennec Fox
Miss Vera sounds like a memorable character in her own right.
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